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Covering everything from recognising symptoms and obtaining initial diagnosis to living with the condition on a daily basis, this complete guide to living with and managing Ehlers-Danlos Syndrome (Hypermobility Type - formerly known as Type III) has been revised and fully-updated in this accessible new edition. The author, who has the condition, looks at how it affects children and adolescents and explores pain management, pregnancy, physical and psychological aspects, and how it widely affects dancers and other performance artists. New material includes:
changes in terminology
information on how osteopathy and nutrition can help
psychological approaches beyond CBT
how to deal with professionals
what to expect from support groups and rehabilitation programmes
This new edition will be a must for anybody who suffers, or suspects they might be suffering from, Ehlers-Danlos Syndrome (Hypermobility Type) and provides everything needed to enjoy a fulfilling life with this complex condition. It will also be of interest to their families and friends, and professionals working with Hypermobility Type EDS.
- Sales Rank: #618670 in Books
- Published on: 2014-12-21
- Released on: 2014-12-21
- Original language: English
- Number of items: 1
- Dimensions: 9.00" h x .71" w x 6.00" l, 1.18 pounds
- Binding: Paperback
- 312 pages
Review
Without having to worry about medical jargon, this is a book for anyone (layperson or professional) who wants to understand the personal impact of, and wants to be up to date with the clinical presentation and management of Ehlers-Danlos Syndrome - Hypermobility Type. --from the foreword by Dr Alan J. Hakim MA FRCP, Consultant Rheumatologist and Acute Physician, Barts Health NHS Trust and Board Non-executive, CWHHE Clinical Commissioning Collaborative, North West London
Review
Without having to worry about medical jargon, this is a book for anyone (layperson or professional) who wants to understand the personal impact of, and wants to be up to date with the clinical presentation and management of Ehlers-Danlos Syndrome - Hypermobility Type. (from the foreword by Dr Alan J. Hakim MA FRCP, Consultant Rheumatologist and Acute Physician, Barts Health NHS Trust and Board Non-executive, CWHHE Clinical Commissioning Collaborative, North West London)
About the Author
Isobel Knight is a writer, researcher and periodic lecturer on Ehlers Danlos Syndrome (Hypermobility Type). She is also a practising Bowen Therapist. Isobel is the author of 'A Multidisciplinary Approach to Managing Ehlers-Danlos (Type III) - Hypermobility Syndrome' and she co-wrote, with John Wilks, 'Using the Bowen Technique to Address Complex and Common Conditions,' also published by Singing Dragon. She lives in South London.
Most helpful customer reviews
21 of 22 people found the following review helpful.
NOT A GUIDE--The Author's poems and stories and love for pilates.
By Ariss McKalynn
PLEASE FIND A BOOK BY A MEDICAL AUTHORITY TO LEARN ABOUT EDS!
This has to be one of the dumbest books that I have ever had the displeasure of reading.
NOT A GUIDE TO LIVING WITH EDS!!!! It's a story from some woman who thinks that she is an expert on EDS.
This whole book seems to be devoted to the author's poetry and person stories.
If you don't know anything about EDS, then maybe up to chapter 8 would be useful, but again IF YOU HAD NO KNOWLEDGE OF EDS. Most of us have a lot of knowledge, before we start looking for books to read. This book is not the most accurate, so please FIND SOMETHING ELSE.
The author chooses instead of giving information about associated conditions, to talk about her experiences with the conditions. This is not a GUIDE!!
DO NOT LISTEN TO THIS WOMAN ABOUT STRETCHING!!!!!! If you speak with your (educated) rheumatologist, they will tell yoga (and most will also include pilates) should be avoided. This woman advocates pilates for EDS people. She also talks about circuit training----running stairs?! EDS people should not be doing any exercises that put strain on your joints. Exercises for EDS people need to be for strengthening muscles, without putting strain (or as little strain as possible more accurately). These exercises may include swimming (avoid over the head work especially if you had difficulties with your shoulders), walking, and perhaps light cardio, such as using ellipticals. Speak with a doctor, not this quack who has obviously not done any real research. LIGHT weight training is also recommended.
Ballet is TERRIBLE for EDS. For correcting posture and learning sense of your body, yes, BUT NOT AS PUTTING STRAIN ON JOINTS!!! You go to a physical therapist, not a ballet instructor to fix these issues.
Her desire to blame everything on EDS is out of control. Trying to blame EDS for cognitive problems, without recognizing that depression and fatigue can cause the cognitive problems . . . she really has no idea what she is talking about.
6 of 6 people found the following review helpful.
while having a lot of good information, and even including facts about the relationship ...
By Amazon Customer
This book, while having a lot of good information, and even including facts about the relationship between hormones and EDS that I wasn't aware of, still doesn't quite present a full, organized picture of EDS, and its treatment. While there are a lot of suggestions for potential therapies that might help with pain, fatigue, or mental health, most of the recommendations seem to be based in either the author's personal experience or in anecdotal recommendations by people she knows. While presenting case studies and true life experiences with the elements being reviewed in the book is interesting, and usually helpful, I feel that this book is too slanted to the author's personal experience, rather than an objective review of the syndrome and proven therapies and and treatments. Most people with EDS are not dancers, and this book has dancing liberally sprinkled throughout - almost like Dancing with EDS was the book the author really wanted to write. Also, much of what she says regarding healthcare and support systems only applies in the UK, which isn't very helpful for readers in the United States.
2 of 2 people found the following review helpful.
Not the best resource.
By moofus
More autobiographical than informative. Wish I had gotten a different book.
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